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The What's Pi$$Ing You Off Thread

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19 hours ago, ilk said:

Hoping my little one has a cataract instead of retinoblastoma

 

Pisses me right off

That would suck mate

When do you find out?

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Tomorrow,  hes going to be put under for a little bit so they can do a ultrasound and dilate his pupils with eyedrops etc to have a good look. 

 

Sounds bad but I really hope it's just a cataract.

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Hope the little one went okay today kittens.

 

Had my appt at the Haematology and Oncology clinic this morning to assess my blood. I’ve been off all meds for 8 weeks trying to raise my platelet count which was a quarter of minimum range, with no avail for the last 12 weeks.

So basically our theory at this point is my body’s killing my skeletal and muscular system with no medical intervention now (the disease I already have been diagnosed with) and is also now *we think* killing my blood cells and possibly stopping me from being able to absorb B12... so I’m dizzy and pasty all day as well as being in super pain. Hopefully tomorrow’s 12 vile blood test reveals a bigger picture or else it’s a bone marrow biopsy. No treatment other than platelet transfusions basically so we will see. 
Luckily my rheumatologist, gastroenterologist, haematologist, physio and GP are now working mostly in sync for a treatment plan and assessment ongoing. 
 

I’ve been stretching and yoga morning and night and walking at least 10,000-15,000 steps per day, gym as many days as possible, along with mass water intake and no booze to try and get inflammation down. But with the new job being so mentally taxing I’m pretty tired. So Uber and pyjamas it is tonight. 

On the positive note, new jobs cool, council job (Local gvt) so all the perks and keeping me busy and my little mans turning 3 this Saturday! Yay! 
 Gotta look at the positives. 

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I used to as well. But we thought it was a short term thing on those occasions. Still doesn’t help my platelets though fml

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Thanks fluffy, little man only just went under. Only way they can look properly into his eye. Such a long sh*t day going to see a whole bunch of different people. It's sad seeing him like this. It's just hard because he doesn't understand what's going on, Hes too busy giving everyone death stares anyway haha 

 

Human bodies are like fords 

 

Fix or repair daily 😂

 

Good luck tomorrow with the blood tests 🤗 hopefully it sheds some more light on your problems

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